February 2012
1 post
Never gone, but coming back!
After a long winded break away from writing here, I decided to pick up Sasha’s little notebook, (my laptop is in repairs), and type away. I’m thanking my friend Viv, (http://fleurdepixie.com/), for providing a link to my blog via her blog. It reminded me that I totally allowed this blog go, neglected.
There have obviously been many reasons for the absence, some justifiable, some not...
October 2011
1 post
Smile for the camera!
We’ve begun visiting Sasha’s old grade-1 teacher, whom is actually retired now. Madame Annick, was someone that Sasha always thought highly of & I know that Madame Annick also loved Sasha. Sasha is a great student, cooperative, obedient, intelligent, respectful, a good peer. Knowing that Annick was to return to Sasha’s school the following school year, to volunteer at the...
September 2011
17 posts
Phase II
Acceptance of our new life is in prospect, still requiring some balance, some structure, although, in the end… Sasha wakes with a smile every morning. I don’t know how she does it… but it certainly helps me with my first smile of the day!
The first phase of her treatment, (treatment is in phases), lasted 29 days… the beginning, as you’ve read in earlier posts, was...
6 tags
A thank you letter!
Bonsoir Normand… mais… bon matin, car tu verra ça au matin, peut être avec un café!
Donc… hier, Sasha & moi, nous étions a l’hôpital pour un petit rencontre & quand le docteur nous avons avise que nous devons rentrer aujourd’hui pour faire un poncture lombaire, Sasha se mettait a pleurer…
“Sasha, on fait ça souvent… pourquoi...
Anonymous asked: Love your strength, both of you girls, stay strong. <3 from Idaho
Damaging to Repair
We’re coming into our fourth week after Thursday & to this date, everything has been good. Following Sasha’s discharge the Monday after her diagnosis, things simply ran smoothly. I honestly, almost have to remind myself that we’re dealing with a very heavy issue. Sasha has reacted so well to treatment with no side effects. It makes it easy. It really does. It makes it easy...
Light the Night Walk 2011 →
Here’s my team’s profile for the Light the Night walk on October 15th, (click on the title!).
I’ve already managed to raise my personal goal of $500 in just a couple of hours today. I really should have had more confidence & faith by putting the goal amount higher… even if nothing stops anyone to donating more to my profile, I’m afraid some may hesitate because...
Light the Night
Light the Night is an annual walk to raise money towards Lymphoma & Leukemia cures & care. Canada wide, people are gathering together with the intent to raise money for the The Leukemia & Lymphoma Society organization. The organization is a nonprofit volunteer based organization, looking out for patients & trying to offer & provide help & support, while also sending monies...
Anonymous asked: My 7 year old little girl has been having 6 enlarged lymphnodes since feb, they have ran blood test after blood test with no results. She has no other symptoms, thankfully We go for a biopsy the end of the month. How did you know something was wrong? How do you cont to look doctors in the face when they can't give you answers to your questions? Thank you Good luck to your daughter, Eve
Riches
Yesterday I passed by my Dad’s office to say hello, with Sasha. The night before, it just so happens that he bumped into my uncle, whom was given a list from my mother of the movies Sasha would like to have on DVD. He handed over the movies to my Dad & we got them yesterday… there was every one that Sasha had requested, including all of the Harry Potter’s available.
I...
Lymphoma or Leukemia?
As you probably already know, Sasha was originally diagnosed with Lymphoblastic Lymphoma and if you’ve been reading, you know that that diagnosis has been changed to Leukemia, (if you do not know, you can read the blog post “New Diagnosis, Same Prognosis”.).
Yesterday we arrived to day-surgery for 7h45 on the nose, I was running a little late because my father had called early...
Knee-jerking
I used to dislike this term as my boss would use it literally all the time. It was quite frustrating when he would use it, because of coarse, as a president of an enterprise, as much as he would like to think, he has no idea what is going on!!!
Recently, I’ve come to an understanding about this term, saying.
Many people who were not in my life pre-diagnosis, are all of a sudden...
Anonymous asked: Thank who/what ever for a childs' resilience & insurmountable strength <3
Anonymous asked: Sheila, As I sit here and read your blog I am in tears. Sasha is such a beautiful and special girl. Always with a smile on her face. Its so hard to understand what you are going through with this. Watching someone you love in pain and struggling is hard. My Grandfather had COPD and though its not cancer it was still hard to watch him struggle. Though this is minor compared what you are going...
Anonymous asked: You are in my thoughts and prayers Sasha and Sheila. <3 max (spudgrrl)
Anonymous asked: my dear Sheila, somehow i just discovered this blog today and now i know so much more, didn't want to bother you with questions about Sasha's condition. i hope she won't suffer too much pain, physical and mental, in her way to recovery. i will keep thinking about Sasha and you and wish all of your family the best. you will defeat ! Galia
studiohumanoid asked: just sending love. Lotsa lotsa love. Pat
Anonymous asked: I Cant even explain the feeling i have in my heart for Sasha. I Think of you and your family and i wonder ...why? why was this family given such a test? You are Amazing and your family deserves the best, so why? I sure you ve asked yourself that same question. I Am just a bystander, learning from your experiences. But i am with you all the way with my prayers, thoughts and wishes. YOU WILL...
New diagnosis, same prognosis.
It was about time that I no longer gave into Sasha feeling down & depressed, with a lack of interest for anything & everything. I finally took initiative yesterday to get outta the house & do something.
You see, Sasha is a very little intellectual fairy. She is top student in class, is fully bilingual, and just learned to speak English merely a little over a year ago. Reads &...
August 2011
5 posts
One day at a Time
Yesterday was a fun day for the regular child, with the event “Dream Ride” hosted by Ferrari Quebec Chapter for the children of oncology, yet for my daughter, being on a certain medication called Prednizone, left her less enthusiastic. This medication, a steroid/cortison, is the medicine that does the magic in shrinking her tumor. Although the side effects are not turning out to be...
Knowing is half the Battle
That is what they say anyway… I truly believe this.
Post-diagnosis was still difficult, as the picking, poking & disturbing the little one during her sleep did not cease.. and unfortunately, will not until this battle is won, by us, by her.
Following her diagnosis, Friday morning she was to fast until a day-surgery procedure be done. This day-surgery, consisted of inserting a catheter...
9 tags
Dream Ride
The President of Ferrari Quebec Chapter, Bernardo Pisarzewski, organized a fun event for the children in Oncology this morning. Bright & early… (well… not so bright, as Hurricane Irene has made her way up the East Coast to annoy us with drowsy weather & damp temperatures…), we met at the hospital this morning to Hitch a ride with a choice of 40 Ferraris. The children...
Note of Thanks
A quick post to thank all those who have sent their wishes to my lil’ Sasha & our family. As tough as we are, knowing we have people who care like friends, family, friends of friends, acquaintances, people we have not even personally met, yet… helps us fight the battle, and not alone.
I have yet the opportunity to thank everyone personally, or even get back to some of your...
The Beginning to a New Life
As most of you know, Sasha was diagnosed with Lymphoblastic Lymphona last Thursday. For those who are just coming on board to follow her journey, last Thursday was August 18th, 2011.
How did we acquire the diagnosis?
Well, it started with a simple visit to the Montreal Children’s Hospital emergency because Sasha had been short of breath. Sasha has a history for asthma so it was of no...